Claudette, the elder sister of Celine Dion, has provided an update regarding the singer’s incapacitating struggles with stiff person syndrome (SPS), a neurological disorder.
Claudette Dion reportedly told Canada’s 7 Jours, “She is exerting herself vigorously, but her muscles are uncontrollable,” as reported by the Daily Mail. “Her consistent adherence to discipline breaks my heart.” Throughout her career, she has consistently put forth effort. “Our mother would always tell her, ‘You will do it properly and you will do it well.'”
The 55-year-old “My Heart Will Go On” singer announced in December of last year that she had received a prognosis of an incurable neurological disorder and would be canceling her upcoming tour dates.
Dion was subsequently compelled to cancel the remaining dates of her world tour in May. The Canadian musician stated that she was “putting in an enormous amount of effort to regain my strength.”
“I am truly sorry to disappoint you all once more,” she continued. “Continually delaying the performances is unfair to you, and despite my deepest regret, it is in your best interest that we cancel all arrangements until I am 100 percent prepared to return to the stage.”
In the new interview, Dion’s sister, nevertheless, downplayed the likelihood of her resuming extensive touring. “It is true that returning to the stage is the objective in both our dreams and hers,” she stated. “To what extent?” Lack of knowledge.”
Claudette Dion further stated that due to the infrequency of the condition, research into a cure has been limited: “Both the vocal cords and the heart are composed of muscles. This is precisely what befalls me. The limited number of individuals affected by this circumstance (one in a million) has hindered scientists from conducting extensive research.
She further stated that Celine and her family maintain a positive outlook: “Although the illness is not widely known, some individuals have given up hope. You would not believe the volume of phone calls that the Foundation receives concerning Celine. We are told by numerous individuals that they are praying for her and that they adore her. “She receives countless messages, gifts, and sanctified crucifixes.”
SPS is a neurological and autoimmune disorder characterized by rigidity of the extremities and thorax. In addition, Dion experiences muscle spasms, which hinder her singing and performing, and are susceptible to triggers such as emotional tension or environmental stimuli (e.g., loud noises).